October 20, 2017

Autism Resources

About Autism

Autism Society of America:

The Autism Society was founded in 1965 by Bernard Rimland, Ph.D. His book,Infantile Autism: The Syndrome and Its Implications for a Neural Theory of Behavior, was written in late 1964 and was one of the first of its kind. In 1968, Ruth Sullivan, Ph.D., became the organization’s first elected president. Over the last 40 years, the Society has grown from a handful of parents into the leading source of information, research, reference and support on the autism spectrum. The Autism Society is the oldest and largest grassroots organization within the autism community.

 

 

NPR Interview:

The reasons behind the rising numbers of autism spectrum cases are explained in this interview with Carroll Grant,PhD, director of the Margaret L. Williams Developmental Evaluation Center at Upstate Medical University. She and Erin Kish, who advocates for autism awareness (www.featofcny.org) and has an autistic son, explore the denial and ignorance that parents of autistic children sometimes still experience and explore the many treatment options now available.

 

Autism Answers:

Find answers to many autism related questions here.

 

Global Autism Alliance:

 

The Global Autism Alliance (GAA) was launched recently in conjunction with World Autism Awareness Day. Representatives from around the world are working in collaboration to raise awareness about autism and to drive home the message that autism is treatable. The target audience includes government and professional agencies, families with a child or adult on the autism spectrum, and the public. We plan to accomplish these goals through international webinars for parents and professionals, translating articles, and much more. You can learn more about the Global Autism Alliance at www.GlobalAutismAlliance.com. In addition, you can watch a special video on the website featuring representatives from around the world discussing needs in their respective countries and their support of the alliance.

 

Early Detection

Autism Fact Sheet:

The University of Southern California (USC), Center for Excellence in Developmental Disabilities (UCEDD) at Children’s Hospital Los Angeles (CHLA) has translated (with permission) the CDC “Learn the Signs. Act Early” Autism Fact Sheet into multiple languages to reach underserved populations and to encourage early identification of autism.

 

Centers for Disease Control and Prevention Developmental Milestones:

Skills such as taking a first step, smiling for the first time, and waving “bye bye” are called developmental milestones. Children reach milestones in how they play, learn, speak, behave, and move (crawling, walking, etc.).

 

Early Signs of Autism:

This patient handout can help parents discern the earliest signs and jumpstart therapy. Download, share with colleagues and parents, and help spread awareness of the early signs of autism in infants.

 

Evaluation

Early Intervention:

How early should we start intervention? To put it simply, intervention should start as early as possible. When parents begin to notice their child is not developing as expected and they voice these concerns, a common response is “They’ll grow out of it, just wait”. Unfortunately, the longer you wait the more difficulty you and your child may have. If you are concerned about your child’s development, whether its their communication, social skills or behaviors, then you should begin seeking information and assistance as soon as you can.

 

Center for Autism and Related Disabilities:

The Center for Autism and Related Disabilities, in collaboration with CapitalCare Developmental-Behavioral Pediatrics, is now offering comprehensive autism spectrum disorder evaluations!

 

Yale Developmental Disabilities Clinic:

The Child Study Center is a department at Yale University School of Medicine which brings together multiple disciplines to further the understanding of the problems of children and families. Among the many disciplines are child psychiatry, pediatrics, genetics, neurobiology, epidemiology, psychology, nursing, social work and social policy.

 

Treatments and Strategies

Communicative Temptations:

Wondering how to get your child talking? We speech-language therapists have lots of tricks in our pockets to do just that. One of our very favorites involves enticing children to talk by creating what we call communication temptations (Wetherby and Prizant, 1989).This little strategy can be used to help a late-talker start talkingto help a toddler begin using two-word phrases, or to increase the chances that a young child with autism will begin communicating.

 

Visual Strategies:

Communication breakdowns can be a “root” cause of problems in social interaction, educational performance, and behavior. Current thinking suggests that communication impairments transcend all aspects of the life of students with autism, Asperger’s Syndrome, and others with moderate to severe communication or behavior challenges. While it is common for educational programming to establish a focus on the development of communication skills for these students, that focus tends to be directed toward developing the student’s expressive communication skills. Comparatively little attention is directed toward increasing the student’s ability to understand the communication in his life. This program will demonstrate why an inability to effectively take in and process information can be a significant factor in the student’s difficulty participating in school and home activities. Numerous systems and strategies will be presented that have proven to significantly improve both receptive and expressive communication, educational participation and overall behavior.

 

Autism Diagnosis Patient Handout:

This handout for parents and caregivers outlines the new definition of and diagnostic criteria for autism spectrum disorder in the DSM-V.

 

Medication

 

Autism and Medication:  Safe and Careful Use:

More than half of children with autism take medicine at some point during their childhood. Deciding to use medicine to treat children with autism is a difficult decision for most families. The Autism and Medication: Safe and Careful Use tool kit was created to help families work with their healthcare providers to make sure that when medicine is chosen as a form of treatment, it is taken safely and effectively.  The kit includes information on “target symptoms,” tools to help monitor effectiveness and practical strategies to treat common side effects. It can be used any time a child is taking medicine, regardless of when it was first prescribed.

 

For Parents and Families

All About Autism:

In her weekly blog for ADVANCE for Speech-Language Pathologists & Audiologists, Autism Spectrum across Ages and Environments, Kathie Harrington, MA, CCC-SLP, shared her professional and personal experiences with autism. She passed away on March 19, 2013. In this e-book, read a selection of her blogs from 2012. Topics include: Challenging behavior of finding an inner voice, Challenging behavior of transition, Signs of sensory dysfunction, and Challenging behavior of hugging.

 

Autism on the Seas:

We organize and staff cruises for families with special needs. We are dedicated to serving the vacation needs of families and individuals with Autism, Asperger’s syndrome, and all cognitive, intellectual and developmental disabilities, as well as (but not limited to) cerebral palsy and Down’s syndrome.  We have been in collaboration with Royal Caribbean International since 2007, in providing Group Cruises for amazing vacation experiences. We also provide “Individual Autism Cruise Services” for those individuals and families who wish to cruise on any date or ship of their choice on Royal Caribbean, Celebrity, NCL, Carnival, or Disney.

 

For Physicians

Treating the Pediatric Patient:

A collection of 8 helpful handouts to help you better serve pediatric patients.

 

Autism and Adolescence

Indiana Institute on Disability and Community:

About this WebShare:  Attention parents and caregivers who have preteens through young adults ages 10-19, who are about to go through or in the middle of a big change in their life called puberty.  Are you ready to talk about hygiene and their body changes?  This WebShare Series session is about learning  what to expect and to help yourself make a plan to be prepared. Resources and websites from recorded session are available. – See more at: http://www.iidc.indiana.edu/index.php?pageId=3592#sthash.VBBVi6wR.dpuf