February 23, 2018

Online Resources

Autism Speaks: Autism Speaks was founded in February 2005 by Bob and Suzanne Wright, grandparents of a child with autism. Their longtime friend Bernie Marcus donated $25 million to help financially launch the organization. Since then, Autism Speaks has grown into the world’s leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families. We are proud of what we’ve been able to accomplish and look forward to continued successes in the years ahead.


Autism Family Online: Join this worldwide group of family members and educators dedicated to meeting the needs of individuals with Autism Spectrum Disorders. This site will give you valuable information, provide an opportunity to get your questions answered and much, much more.


Autism Hangout: Today, autism associations (and their web sites) primarily focus efforts on finding CAUSES and CURES for autism.  That’s great!  But there are 12 to 17 million caregivers looking for daily insights on how to assist those living with autism.   AUTISM HANGOUT provides the Autism Community with an online resource that compiles news, knowledge and personal experiences on how best to thrive with autism.

What is Autism Hangout?
AUTISM HANGOUT is an online discussion forum that reports news, complies facts and community-submitted personal experiences andinvites ongoing discussion to discover insights on how best to deal with the daily challenges of autism.AUTISM HANGOUT is a dedicated resource serving the autism community, defined as:
a.   Parents of children with autism
b.   Children and adults with autism
c.   Caregivers to the individual with autism such as siblings, grandparents, other relatives, teachers, classmates, doctors, clergy, care providers, community service professionals (i.e. policemen and firemen), neighbors and product and services providers wanting to service this community
d.   The media at largeAUTISM HANGOUT is a compendium of community-reported reviews of products and services.  Reviews serve as both recommendations and warnings.  Product and service businesses are invited to join in discussions to learn how their offerings can best serve the autism community.AUTISM HANGOUT is also a social networking opportunity – similar to myspace – that invites autism community members (i.e. caregivers as well as those with autism) to get to know and learn from each other.  Groups of those sharing similar interests can also be formed.


SKIP of New York

For children with complex medical conditions.
For children with developmental disabilities.
For their families who want to care for them.
For everyone who believes a child belongs at home.
When it comes to healing a child, there’s no place like home.

SKIP is the way home for chronically ill and
developmentally disabled children.


Dear Colleague Letter:  Here is a template letter to deal with harassing/bullying in schools.


Go For It!:  This is a great website for free chore charts, behavior charts, tools for goal-planning for kids and parents, etc!


504 and IDEA Comparison Chart: Find information about 504 Plans and the IDEA Regulations.


CSS – Self Directed Support Using NYS OPWDD Consolidated Supports and Services (CSS): Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services. It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan. It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).

Parent-to-Parent: Parent to Parent of NYS is a place where families of individuals with special needs and the professionals who serve them can meet and share information. This website is maintained as a resource for families. We’ve walked the walk and are here to help other families.


Special Needs Parenting Handbook:  Parenting a child or children with special needs can be a struggle, but can also be incredibly emotionally rewarding. Any parent will tell you that helping a child navigate through life’s many difficulties is worth the effort. Parents of children with special needs can be extra proud of helping their kids thrive in a world that can be harsh and unforgiving towards those with perceived differences. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needs.